CTNNB1 FOUNDATION

Who are we fighting for?

True heroes
continue to smile,
proving that courage
is their superpower.

CTNNB1 SYNDROME

CTNNB1 Syndrome is a severe neurodevelopmental disorder caused by disruption of chromosome 3p22.1 of the CTNNB1 gene. It is a recently discovered condition associated with developmental delay, intellectual disability and speech delay.

CONFERENCE 2024

We are pleased to invite you to our 2nd CTNNB1 Syndrome conference & clinical examination of children.
The conference will be on 14th and 15th of June and the clinical examination of children on 15th and 16th of June 2024.

»All kids need a little help, a little hope, and someone who belives in them.»
-Magic Johnson-